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Nihal Bitla, the teenage face of progeria in India, dies in Telangana
Tuesday May 3, 2016 7:46 PM, Agencies

Nihal Bitla

Mumbai:
The teenage face of Progeria in India, 15-year-old Nihal Bitla, died on Monday night in Karim Nagar, Telangana. Nihal was at his native village to attend a family wedding. He lived with this family in Bhiwandi, on the outskirts of Mumbai.

Members of Team Nihal said the teenager was suffering from arthritis for a long time and also faced dehydration just before he was admitted to a hospital on Monday evening.

About an year ago Nihal Bitla had undergone a treatment at Boston..

Children with progeria usually develop the first symptoms during their first few months of life. The earliest symptoms may include a failure to thrive and a localized scleroderma-like skin condition. As a child ages past infancy, additional conditions become apparent usually around 18–24 months.

Nihal had met his icon and Bollywood star Aamir Khan in December 2015 after his Facebook post about his wish to meet his favourite actor went viral.

“I want to meet Aamir Khan and thank him for the movie Tare Zameen Par which gave me courage–but there’s not much progress on that one yet!", Nihal wrote in his facebook page.

Nihal had requested Aamir Khan to help spread the word for the Progeria Research Foundation to identify the other victims from India.

According to the Progeria Research Foundation there are 150 to 200 children worldwide living with the degenerative disease who have not yet been diagnosed or identified. Out of these, 60 children are believed to be from India.

'Find the other 150' is a project to search for and identify the Progeria patients in India and other countries. The Progeria Research Foundation (PRF) is funding the participation of children from around the world, who will go to Boston Children’s Hospital in Boston, where they will have access to the only known treatment for Progeria.






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